Anyone out there have a baby with mastocytosis? - mastocytosis more condition_symptoms
I have a son, mastocystosis, I was not able to with other parents who Childern with the same disease, everyone knows who have a support group to communicate? In Southern California?
Mastocytosis More Condition_symptoms Anyone Out There Have A Baby With Mastocytosis?
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I mastocystosis and found that it links to help, support and information urticaria@yahoogroups.com. I'm in SoCal too, but no knowledge of local support groups, but only a few antennas will see if anyone knows. For now, the group of hives to a poster with their questions and advice on child labor mastocytosis. I feel for you I can not even imagine what it would be a baby with a mast, it was quite difficult, an adult under Gastrocrom 8 bottles per day! Good luck and God bless.
There are support groups on the website of the company listed mastocytosis: http://tmsforacure.org/
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